Lyme

I try not to write that much about my Chronic Lyme Disease.  It’s hard for me to share, yet I love to read about what others are doing to fight their Lyme.  Lyme is probably the hardest Disease to have, to deal with due to the lack of knowledge out there.

Lyme is not only spread by a tick, but it can also be spread by a flea, deer fly, mosquito, or any other biting insect.  I shared in one of my other posts how I contracted this Disease by a deer fly.

I was reading about how Avril Lavigne has recovered sufficiently from her bout with Lyme.  I am very happy for her, and I am glad that they found she had it so quickly.  Unlike her, most of us do not have access to Doctors who know what they are doing let alone want to try and find out what is going on.  It’s hard when the CDC doesn’t even know what this Disease is capable of doing. I also worry about how fast Avril Lavigne recovery was.  I fear this may be spreading the wrong information and I fear that we may see her relapse like so many others have before her.  I sure hope this doesn’t happen, but from what I have been discovering, it is a very real probability.  Lyme is something that once it has gone Chronic is manageable but not curable. At least not yet, we Chronic suffers, hope that will change soon.

Yolanda Hadid a beautiful model and actress, whom I watch with much interest on the TV reality show The Real Housewives of Beverly Hills. Has had Lyme since 2000.  She had one year of remission now she is back to being in Lyme symptoms.  I really feel for her, and I wonder why did she have Lyme come back on her.  After all my research I can tell you this, she still had Lyme, and I think that if we as Lyme warriors don’t continue to fight it will take over and cause more issues.  This is not a curable disease like the CDC wants to make it out to be. We need so much more research on this Disease.  This Disease is worse than cancer to me.  I have watch family and friends fight cancer, the disease is more unlikely to take them, it is the treatment that causes most deaths.  I understand there will be those who will disagree and I am glad for that, that is what helps us learn.

Yolanda Hadid went on to say

Here’s what she posted on Instagram after her speech:

Yolanda's Instagram post about Lyme relapse

Read other news coverage of Yolanda’s announcement: LymeDisease.org

Like most, I can not take antibiotics, that said I am grateful I can not.  From what I have read on Blog and in Lyme rooms, Antibiotics are not the answer.  They are making things worse for most.

My Day starts with Chaga Tea with a scoop of collagen in it.  Lyme Disease loves collagen, and without collagen, I hurt from head to toe with Joint pain.  I take four different Nano sprays made by Results RNA   I eat whole organic foods and drink nothing but water or herbal teas.  I have to watch everything I eat, or I suffer from cramps, bloating and horrible stabbing pains in my stomach.  I take probiotics made by Dr. Axe.  I don’t sleep well, so I take a combination of motherwort, skullcap, and catsclaw.  Other nights I take a combination of California Poppy, Ziziphus seed, Lemon balm, passionflower, chamomile, lavender, and cardamom seed.

I take CoQ10 and CBD.  I have a tough time with Brain Fog, and I can not drive when I am like this.  I have probably spent more on herbs than a Disney or Hawaii trip put together.  I can not find a doctor that will work with me in my Township.  It’s hard when we are fighting ignorance.

Every day is different depending on how I wake up.

Dr. Rawls recommends adding and subtracting different herbs throughout your healing protocol.  I am so lucky to be in a state where cannabis is legal, so I am growing my own CBD plant.  I take CBD for the anxiety, panic, and pain. This Disease causes me every day.  CBD Living water also is one thing I will not go without.  You may ask how much this all cost.  I can tell you that I spend less doing herbs than going to a doctors office.   I live in an area that has no naturalistic doctors.

I have almost died from the doctors I did see before I found out I had Lyme.  I was misdiagnosed for over  34 years. That is CRAZY.  I have been told I am depressed and have Fibromyalgia.  I am told it is all in my head or I am doing this for attention.  I can tell you I have much better ways of getting the attention that’s for sure!!!

Lyme Disease doesn’t maim you; there are no physical symptoms for others to see.  I have a limp in my walk, but that is from an accident I had with a truck that hit me.  If you were to look at me, I would not look sick.  I have been called a hypochondriac.  I have been ridiculed for staying away from people because I do not want them to see me suffer.   I can not drive at times, and I know that is because I am not well and I do not want to hurt anyone.  Wish more people were like that.  I have a hard time with basic things in my day.

Sleep is a luxury most people take for granted.  I haven’t had a full nights sleep in over 20 years.  I hurt so badly and no matter what mattress I use I wake up crippled.  I can only stand being in bed for about 4 hours and then I have to get up.  I have days where I feel like I have the flu. I run fevers when I have die off from this disease.  I freeze the next minute.  I have hot flashes so severe I feel like I will burst into flames.  I take four hundred milligrams of progesterone, and that helps with the menopause a stupid doctor put me into. Fibroids, cysts, and PCOS is and can be a symptom of Lyme Disease.  Lyme Disease changes your bodies chemistry.   MS, Fibromyalgia all can be misdiagnoses of Lyme Disease.

There is no blood test as of today that can tell you if you have Lyme Disease.   Those doctors who study Lyme, there is no definitive blood test.  I had a chiropractor who has Lyme tell me that he suspected I have Chronic Lyme.  I have done years of research and found other Doctors who found they had Lyme by doing the same research I am using today.  It’s frustrating to have no help due to lack of education our doctors don’t have.

I have learned so much about my Lyme through trial and error.

I deal by staying in contact with my mind, body, and spirit.  I work with listening and watching how I deal with herbs.  It’s not easy; there are no one pill wonders.

I can’t work, but I work hard around here trying to find ways to heal myself.  I am learning to listen to myself and not panic and run to the doctor.  I am learning to love my limitations and not get depressed when I wake up sicker than the day before.  I celebrate my good days!  It’s a real blow to the ego to wake up and not be normal.  I have to be patient and very loving towards myself. That’s not easy when you have those around you doubt what you have. You have cancer, and all are concerned, you have chronic Lyme, and you have to prove it.

You lose family and friends.  You find you have only yourself to love you.  I have become stronger.  I do what I can, and I am proud of how far I have come.   I pray every morning before I get out of bed for my love towards my disease.

I accept my limitations.  When I feel horrible, I celebrate. When I feel super sick, those are the days I know I am killing this disease. Yet it is scary to be that sick, it hurts so badly, and I panic due to the intensity.  My heart is always telling me to take it slow to trickly like the water, finding my way day by day.

I am grateful for all that I am and all I do.  I have moved away from those who are not supportive.  I try not to complain but stay as positive as I can.  I find ways to love my days.   I enjoy life so much more than I once did.  I love my good days and cherish them, I play hard and exercise and play.  On my bad days, I sit with a good movie, drink and eat healthy things to help my body fight.  I sit and listen to the birds as I take notes of what I am feeling.  If I get depressed, I make a list of all that I am grateful for.  I don’t plan for anything in the future, I take one day at a time and enjoy.

Chronic Pain from Facebook posted this the other day: “I do things at Pain levels others wouldn’t even consider moving at because if I don’t, I won’t have a life. This does not mean I’m having a good day. I just managed to be stronger than it for part of a day.”

I don’t know how long I have in this lifetime, but I do know I have learned a lifetime of things with this Disease. I have more compassion for those who suffer every day with whatever illness they have.  I have no patience with those who are rude, crude, and uncaring.  I found I can let go of the past fast and allow life to flow as it will.  I live true to myself even if that is in silence.  I don’t have to be right, but I will not be bullied. I am stronger today ill than I was when I was not ill. I take advantage of those things I can do, and I don’t get down about the things I can not do.

So there you have it, this is what my heart had to say today.  Wishing you great growth in your own journey today.

WWYHS

 

 

 

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